The job that Fibromyalgia was really doing for me...
Feb 10, 2020
For over a decade, fibromyalgia was a constant presence in my life. Relentless pain, deep fatigue, a body that felt like it was working against me no matter what I did.
I tried everything. I managed, adapted, medicated, pushed through. And for years I understood it purely as a physical problem in need of a physical solution.
What I didn't yet understand was that my body and my history were one system. The pain signal my body had been running wasn't separate from my story. It was part of it.
This is what I came to understand. It is my story, not a template and not a promise. But if something in it resonates with your own experience, I hope it offers a different lens for looking at what your body might be trying to tell you.
I grew up in an abusive household.
I want to say that plainly, because for a long time I couldn't. The word felt too large, too dramatic, and I felt guilty naming it. I didn't want to hurt the parent who was responsible, the parent who did nothing, or the family members who consistently looked the other way. But it is accurate, and it matters to this story.
What abuse in childhood does, particularly when it is prolonged and when the people causing harm are also the people you depend on for survival, is force a kind of fragmentation. The developing self cannot hold all of it at once. So it divides. Parts of you go underground, carrying what cannot be safely felt or expressed. Other parts learn to manage the surface, to read the room, to become whatever is needed to stay safe and connected.
The psyche is doing its job. Getting a child through, by whatever means available.
But those parts don't automatically integrate when the childhood ends. They go with you.
By my mid-twenties I had built a life that looked, from the outside, like success. A prestigious career, a fast-track programme, a salary and trajectory that impressed the people whose approval I had spent my entire life trying to earn.
And that is exactly what it was. A life built around finally gaining that approval, around the emotional safety I had always been reaching for, around becoming the version of myself that would at last be enough.
It looked right on paper. It felt like a deep betrayal of everything I actually was.
The fibromyalgia began around this time. Pain that started in my shoulder and spread. Sleep that became impossible. A body that was, I now understand, running a physical pain signal in parallel with a much longer-running emotional one. The fragmentation that had been necessary in childhood had never resolved. The parts of me carrying that original pain were still active, still consuming enormous energy, still signalling in the only language left to them.
My body was not failing me. It was speaking for the parts of me I hadn't yet learned to listen to.
The shift did not come quickly. There was no single moment of revelation, no session that cleared everything, no point at which I woke up well.
What happened instead was a long, incremental process of beginning to listen.
It started with the physical. Long before I had the language for what had happened to me emotionally, I began to notice the connection between my symptoms and my circumstances. When I eventually left the career that had been suffocating me, the pain eased. Not completely, but noticeably. When I began making choices from my own needs rather than from the need for approval, something in my body responded.
I was, without fully knowing it yet, starting to become trauma-informed about my own journey. Starting to hear what my physical parts had been saying. The emotional work came later, and required something harder: building boundaries, separating myself from dynamics that had kept the original patterns running, learning for the first time what it actually felt like to act in my own interest.
The chronic fatigue tracked this closely. As the self-damaging beliefs began to shift, as I began to relate to myself with something closer to kindness, the fatigue that had been the cost of carrying so much unprocessed pain began, slowly, to lift.
This was not a treatment. It was a decade-long process of integration, of bringing fragmented parts of myself back into relationship with each other, of learning to be in honest dialogue with my own heart, mind and body.
The improvements were incremental because the work was incremental. That is simply how this kind of healing moves.
I want to be honest about where I stand now, because honesty here matters more than a tidy ending.
I am, by any measure, unrecognisable from the person I was ten or fifteen years ago. The fibromyalgia pain that was once constant is no longer a feature of my daily life. The chronic fatigue has gone. I am in ongoing, genuine dialogue with myself in a way I could not have imagined when I was in the middle of it.
But there is scar tissue. There always is after something like this.
Trauma leaves residue, and I have mine. A nervous system shaped by years of hypervigilance doesn't simply return to a factory setting. I have learned to work with what remains, to understand it, to make peace with it rather than fighting it as though it were still a problem to be solved.
That relationship with my own body, curious and compassionate rather than combative, is one of the most significant outcomes of this work. Not a return to some version of myself before any of this happened. Something more whole than that, and more honest.
If you are living with chronic illness today, I am not here to tell you what it means or what is causing it. That is complex, personal, and deserves proper medical attention and support.
But I would gently invite you to sit with a question: is there anything your body might be trying to communicate that hasn't yet been fully heard?
Not as a diagnosis. Not as a reason to bypass medical care. Simply as a question worth asking.
If something in this resonates, if you sense there might be something beneath the surface that hasn't yet been reached, I would love to have a conversation. Not to promise you my journey. But to explore, carefully and at your pace, what yours might look like.
This post is for reflective purposes only and does not constitute medical or clinical advice. Please always work with qualified medical professionals regarding any physical health condition.